Dedicated to End-of-Life Care for Kidney Patients

Mission: To promote effective interchange between patients, families, caregivers, payers, and providers in support of integrated patient-centered end-of-life care of chronic kidney disease (CKD) patients.

 

Hospice

Hospice is a team approach to health care that helps patients at the end of life either at home, or in a hospice or hospital setting. Hospice care provides physical, emotional, and spiritual comfort for the patient, and education and support for the patient and family. It is possible for dialysis patients to receive hospice care.

Hospice is paid for through the Medicare Hospice Benefit, Medicaid Hospice Benefit, and most private insurers.  If a person does not have insurance coverage, hospices will work with the person and his or her family to ensure needed services are provided. Hospice is available to all persons regardless of age, race, or religion.

Underutilization of hospice in the end-stage renal disease (ESRD) population may be fostered by confusion with regard to eligibility and variability of providers to accept ESRD patients. A patient with ESRD may receive Medicare coverage for hospice services. Medicare coverage for both dialysis and hospice services is available under separate benefits for ESRD and hospice. ESRD patients are not required to withdraw from dialysis to be eligible for the Medicare hospice benefit.

ESRD patients who choose to withdraw from dialysis may receive Medicare coverage for services via the hospice benefit. In this situation, ESRD may be considered the terminal diagnosis and all services related to ESRD would be covered under the Medicare hospice benefit.

ESRD patients may elect to use the hospice benefit under a diagnosis of ESRD as the terminal diagnosis. In this situation, the hospice provider must be responsible for all dialysis and supplies as part of the care for the terminal diagnosis and palliation. This must be reflected in the plan of care. Under these circumstances, the Medicare hospice benefit would be engaged without the Medicare ESRD benefit. A diagnosis of ESRD may be used as the terminal diagnosis only when 1) the hospice provider accepts responsibility for dialysis and non-dialysis renal related services or 2) a patient chooses to withdraw from dialysis.

ESRD patients with a terminal diagnosis other than ESRD who choose to continue dialysis for palliative reasons may receive the Medicare hospice benefit for services related to the terminal diagnosis. Hospice services not related to the terminal diagnosis are not covered under the hospice benefit. Thus, Medicare coverage for services related to ESRD (including dialysis and non-dialysis renal related services) would continue under the ESRD benefit.

Additional information on the Medicare Hospice Benefit is available by visiting the Centers for Medicare & Medicaid website. This resource has been developed to incorporate all Medicare Fee-for-Service Hospice information in one location. It includes billing and payment information, CMS Manuals, and educational resources.

Caring Connections is a program of the National Hospice and Palliative Care Organization (NHPCO). It is a national consumer engagement initiative to improve care at the end of life, supported by a grant from the Robert Wood Johnson Foundation. It provides free resources and information to help make decisions about end-of-life care and services, including hospice.

Educational Tools for Dialysis Facility Staff and Hospice Providers:

*NEW*
End Stage Renal Disease: When Is It Time for Hospice? (PowerPoint Slide Presentation) This presentation addresses the Medicare hospice benefit available to ESRD patients. Presented to the National Hospice & Palliative Care Organization in May 2007, this presentation has 3 components:

  1. Introducation & Background, presented by Perry Fine, MD

  2. ICD-9-CM 585.6 End Stage Renal Disease, presented by Harry Feliciano, MD, MPH. This presentation addresses coding and payment and is directed at hospice agencies (for companion case study, click this link: ICF-Enhanced ESRD Case Scenario (PDF))

  3. The Hospice-ESRD Patient-Dialysis Center Interface, presented by Malene Davis, RN, MSN, MBA

*NEW* Renal Palliative Care Bibliography (PDF)

Did this patient die with hospice? New questions in caring for patients with ESRD (Slide Presentation PDF)

Hospice in ESRD: To Withdraw or Not to Withdraw (Slide Presentation PDF)