Additional Resources
State & Federal Legislation on Advance
Directives & DNR Orders:
End-of-Life
Nursing Education Consortium (ELNEC) *NEW*
The ELNEC
project is a national education initiative to improve end-of-life
care in the United States. Over the next 6 months, ELNEC is
providing 3 critical care courses for nurses who work in critical
care areas, including dialysis units. This is a train-the-trainer
program; trainers will return to their institutions equipped
to train others. Social workers and other disciplines are
invited to attend, except for the January 2007 course.
Questions
and Answers is a document intended
to educate ESRD patients and their families about end-of-life
care.
Supportive
Care for the Renal Patient A book edited by E. Joanna
Chambers, Michael Germain, and Edwina Brown, that provides
comprehensive guidance in providing palliative care to dialysis
patients.
Dying
Well (book) A book written by Ira Byock, MD, that provides
resources for individuals facing serious illness. Dr. Byock,
a palliative care expert and advocate for enhanced end-of-life
care, also offers information for families and professional
caregivers.
Growth
House has a collection of international resources for
end-of-life care. This site includes a search engine to provide
in-depth resources on compassionate care for those suffering
from serious illnesses.
Americans
for Better Care of the Dying is an organization, based
in Washington, DC, that aims to improve end-of-life care by
discovering the social and practical changes needed for effective,
long-term programs.
National
Alliance for Caregiving is a non-profit coalition created
in 1996 to support family caregivers and the professionals
who serve them. Its membership includes more than 30 national
organizations.
National
Family Caregivers Association provides services, support,
and education to improve the quality of life for caregivers
and families. The association offers free membership for family
caregivers.
MediCaring.org is a site sponsored by the Washington Home Center for Palliative
Care Studies (CPCS), and it is affiliated with Rand Health.
This site offers a variety of resources on improving end-of-life
care, such as caregiver guides and research on chronic illness.
Understanding
End-of-Life Care: The Social Worker's Role is an online
course developed and offered by the National Association of
Social Workers. Social workers can earn CEUs for participation.
Advanced
Care Planning Brochure Download
an order form for Advanced Care Planning: For the Dialysis
Patient and Their Family. Talking about their wishes
can help patients and their families plan for their future
care.
Dying
Well (online course) is part of the Digital Imaging Advancement
Productions' (DIA) Learning division. This course contains
high-quality video documentary, text, and quiz components
and is approved by the National Association of Social Workers-Missouri
Chapter for 12 continuing education hours.
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